Month: February 2017

Diablogue #2:

Ken: So shall we continue where we left off on our previous post?

Christina: Sure. I asked you why you were speaking so formally in our blog, and you said you always talked like that on the inside—that you self-censor constantly in day-to-day conversations, and that surprised me.

Ken: I realised early in life that I paid particular attention to sounds. I was attracted to diverse sound patterns.

Christina: Like what?

Ken: When I was a toddler I would bang on any and all objects and listen to the sounds that they produced.

Christina: Cool.

Ken: When I was approximately four years of age, my father picked up a guitar and started to play it. This lead to one of my first great awakenings, music. Not only did I like to listen to it, I realized I had an ability to create it.

Christina: So how does this relate to your formal speaking?

Ken: To me, all spoken languages are musical; formal speech sounds like classical music, whereas common speech sounds more like folk music and/or country music.

Christina: Wow. Really interesting. I’ve never thought of it that way.

Ken: The difficulty for me is the realization that different social situations demand different forms of music—or speech.

Christina: When did you realize that?

Ken: It started in First Grade. People would ask me, “Why do you use such big words—talk so flowery? Philosophize?” Whenever they said something like that, I would go silent, withdraw, internalize, and self-analyze. I slowly concluded that I was different, although I did not know why or how I was different. Or how to correct it.

It was September 1966 that I had my second great awakening. Star Trek premiered. Mr. Spock. “Pow!” Someone who talked like I wanted to talk. Someone I could understand clearly. I made a connection.  

Christina: Aha! So that’s why you’ve always loved Star Trek—and especially Spock. Now I get why. But that First Grade story makes me really sad. Imagining that little kid getting more and more isolated—alone.

Ken: It’s like a puppy being whacked by a stick; the puppy goes around the back of the shed and peeps out to see when and if it is safe to come out.

Christina: And that still happens? When?

Ken: My brain is physiologically and neurologically different from those of others. I am unable to self-censor ceaselessly. Self-censorship is one of the contributing factors of my daily exhaustion. I will inevitably lose self-control, and my natural proclivity towards formal speech will override my self-censorship.

Christina: Ok. But where’s the puppy? Do you still go behind a shed?

Ken: Still behind the shed peeping out from time to time. I will never be able to completely rewire my brain. I will always be autistic, and when I become overwhelmed, anxious and/or exhausted I will slip into formal speech patterns. When I do, people will often look at me oddly, and this sends the puppy back behind the shed.

Christina: Does the puppy need to stay behind the shed as long?

Ken: No, the duration is progessively diminishing. However, it will never completely disappear.

Christina: That’s such an unhappy metaphor! Now I’m thinking about how my own speech has changed since marrying you. People have told me I speak very… not formally exactly, but carefully and precisely. I don’t think I did that so much before. Married couples become more like each other over time. Maybe that’s happened with us in speech. I’ve adapted to become a bit more formal, and you’ve adapted to become more casual—at least socially.

Ken: I believe your assessment to be correct. Nature tends towards a balancing and blending to maintain equilibrium.

Christina: So that natural formal speech tendency makes it hard for you in some group situations. I can see how your speech could strike people as stuffy or big-headed.

Ken: That is correct, and that is the most difficult part. I never intend to appear as such.

Christina: Maybe that’s why you sometimes seem more comfortable among academics who tend to talk like you than in more casual conversations with friends who don’t know you’re on the spectrum. Our good friends have gotten used to your speech patterns, I think.

Ken: Yes, and those are much welcomed tiny islands of sanctuary and safety.

Christina: Let’s talk about interpretations and misinterpretations both ways next post.

Ken: Agreed.

 

Next post, Diablogue #3: “About Interpretations.”

Diablogue #1:

Christina and Ken writing first post at Albert’s Restaurant in Edmonton.

Christina: So, I’m glad we finally started this.

Ken: I as well. Why don’t we let our readers in on why and how this evolved?

Christina: Ok. Since your diagnosis five years ago, autism has increasingly consumed our lives, our thoughts, and our conversations. Some of that has been positive. We’ve learned a lot about how to make our relationship work. It seem to be such a struggle for you, personally. You seem to be getting more frustrated and more isolated by your autism every day. 

Ken: That is a correct analysis.

Christina: You haven’t had any other outlet to manage or talk about it. So, I’ve been urging you to read about autism, watch movies on it, and maybe start a blog. I thought that would help you process and manage autism better. We would get more balance back as a couple, make our relationship less about ‘you’ and more about ‘us.’ The blog would get some conversations going that don’t involve me.

Ken: This blog is an excellent idea for those reasons. However, I think I will still need your help with navigating and decoding the social aspects of the blog. To organize it as it develops and to keep writing it every week.

Christina: Of course! That’s become our everyday rhythm, supporting each other like that. I’m excited about where this could go.

Ken: Through this blog we can both learn more about autism for our mutual benefit.

Christina: Yes. But I think you should be the driver, to take the lead.

Ken: Agreed. That way it will take the focus and pressure off you. At the moment, you are my sole lightning rod.

Christina: Some days it sure feels like that!

Ken: I also want to write this blog to connect with others, both on and off the spectrum, to share and to learn from and with them.

Christina: For sure. We have a lot to learn. I hope we connect with other couples like us. We could compare notes, learn other work-arounds, and have a good laugh about some of the crazy things that happen.

Ken: I concur. It is important because 80% of autistics never marry.

Christina: And I know why. This is hard work—but worth it.

Ken: Yes. And I am glad I am not one of those statistics. We have both gained much helpful data so far to explain it.

Christina: I know there are lots of other blogs on autism. But ours is a conversation, so I think it has something different to offer. It might interest anyone curious about autism or even just about communication across differences. Relationships too.

Ken: Agreed.

Christina: Why are you talking so formally if this is supposed to be a conversation?

Ken: This is how I always want to talk. This is how my ‘self’ or internal dialogue runs. Since I was young, I have always been criticized for the way that I speak. Since then I have self-censored my speech patterns in order to make it less formal. However, it has been my experience that informal language is less precise. That is lamentable. It has been my observation that precision and accuracy leads to fewer misconceptions and miscommunications.

Christina: Hmmm. Fascinating. I just learned something new about you—that you self-censor even in daily conversations with me. I think we should make that our next topic. Yes?

Ken: Agreed.

 

Next post, Diablogue #2: “About Talking.”